Rant for 21/11/07 - Zakkies guide to basic Autistic rights
When I started these rants, I wanted to stay away from the "basics" of the Autistic rights movement, as I believed it would be recycling things that had already been said many times over, and I also believed that AFF members would already know a bit about autistic rights, because they sought out and joined this site - probably after having found and dismissed several internet "support" groups. Recent discussions have taught me otherwise.
It seems that we're now getting big enough that for many, we're the first port of call for Autistic culture, rather than the previous state of having to slog through a thousand negative sites to find the one positive site. While this is a great breakthrough, it also means that many people are not subject to the negative images of Autism repeatedly thrown around the internet, and thus do not realise why we are so adamant about Autistic rights itself. Many don't even realise that although the site is a fun place to hang out and discuss random ideas, the site is also the home base for a political movement.
This can leave new members unsure what we are talking about in many of the threads, and occasionally confused at the anger shown to the groups we call "curbies".
And so, for new members, as a refresher to old members, or as something you might want to show to curious non-members, here's my take on the absolute basics of the Autistic rights movement.
Basically, Autistic rights is about combating the idea that Autism is an entirely negative thing that must be cured, and preventing human rights abuses of Autistic people.
It is widely believed that the person that kickstarted the Autistic rights movement is a man named
Jim Sinclair, after a presentation entitled "Don't mourn for us". As someone who was non-verbal until the age of 12, Jim's ability to articulate the desires Autistic people started many people thinking. This presentation outlined some of the basic tenets:
- That autism is not something separate from an Autistic person, but is part of who that person is.
- That there's not a normal child "hiding behind" Autism.
- That a cure for Autism would mean that the child with Autism would cease to exist, and an entirely different "non-autistic" child would take it's place.
- That the ways autistic people relate to others is different, not nonexistent, and that Autistic people are not unreachable.
Here's the final words from the presentation:
"Take a look at your autistic child sometime, and take a moment to tell yourself who that child is not. Think to yourself: "This is not my child that I expected and planned for. This is not the child I waited for through all those months of pregnancy and all those hours of labor. This is not the child I made all those plans to share all those experiences with. That child never came. This is not that child." Then go do whatever grieving you have to do--away from the autistic child--and start learning to let go.
After you've started that letting go, come back and look at your autistic child again, and say to yourself: "This is not my child that I expected and planned for. This is an alien child who landed in my life by accident. I don't know who this child is or what it will become. But I know it's a child, stranded in an alien world, without parents of its own kind to care for it. It needs someone to care for it, to teach it, to interpret and to advocate for it. And because this alien child happened to drop into my life, that job is mine if I want it."
If that prospect excites you, then come join us, in strength and determination, in hope and in joy. The adventure of a lifetime is ahead of you."
The full text of the presentation is here -
http://ani.autistics.org/dont_mourn.html
As far as combating the idea that Autism is an entirely negative thing that must be cured, there are two differing ideologies - the pro-cure movement (or curbies), and Autistic elitists.
To clarify, "curing" involves altering an Autistic persons personality to remove everything Autistic about them. It does not refer to teaching them skills or offering support services. In fact, Autistic rights advocates support increasing support services for Autistic people.
Curbies believe that Autism is entirely negative, and must be cured. Some of these are die-hards that believe this in spite of evidence presented to them, but most of them are simply confused parents that have never heard anything but the opinion that autism is entirely negative - from doctors, media, and curebie organisations.
As for the die-hard curebies, they may continue to believe the things they do for several reasons.
They may say that they believe we want to withhold support services from Autistic people - which is incorrect.
They may say that we believe we are saying Autism is "better" than Neurotypicalism, and dismiss us for that reason, when all we are saying is that we are different.
They may say that our forms of Autism are "less severe" than their childs "full" version of Autism, thus anything we say doesn't apply to them - despite the fact that people described as "low functioning" are involved in the movement.
Curebie organisations are groups set up to fundraise for research into a cure for Autism, and to promote the idea that Autism is entirely negative. Unlike regular "curebies", who may be merely misguided, curebie organisations are very aware of the views of the Autistic rights movement, and seek to discredit them wherever possible. The largest of these groups are "Autism Speaks" and "Cure Autism Now". These two groups have recently merged into one entity, but still retain the two separate names.
Their efforts to promote the negative image of Autism often involve "pity" propaganda showing parents of Autistic children complaining about their lives, followed by footage of their children having a tantrum. You can spot these types of documentaries easily, as they usually have some reference to "understanding autism" in the title, but show barely any footage of Autistic children or Autistic people, preferring to focus on parents.
The most famous of these videos, "Autism Everyday", shows a parent actually saying that she wanted to kill her Autistic child and herself, but only stopped herself because she had a "normal" child at home. She said this while the Autistic child was actually in the room.
The other ideology the Autistic Rights movement tries to combat is
Autistic elitism, which is the idea that some types of Autism are positive and should be celebrated, while other types are negative and should be cured.
I'm ashamed to say that I once had this same idea - but after joining this site and finding out more about the different expressions of Autism, I realised that this idea was based entirely on ignorance, and on believing some of the negative propaganda spread by curebie organisations.
Once you get to know more about people that are called "low functioning" by society, you really get to see that the term is pretty meaningless, and that being Autistic is a part of their personality too.
I could keep going on this for hours, but after a while it would stop being a rough guide. So I'll leave you with a few key points to help you navigate the politics of Autistic rights.
- You'll often hear the word genocide being used. This doesn't mean that curbies want to kill all Autistics, it means that they want to remove Autism from the genepool. It also doesn't mean that genocide is their primary aim, but that they don't mind if genocide occurs. It may seem like an extreme word due to the images the word raises, but it is still an accurate use of the word.
- Some people feel that it is helpful to point out that Autism often creates talents in particular areas, or that historical figures widely regarded as "geniuses" may have had Autism - like Einstein, Newton, Tesla or Turing. Other people feel that this is counter-productive, as it implies that we need to be geniuses in order to be regarded as equals. You'll have to make up your own minds about this.
- In cure debates, emotions run high, and it's usually due either to personal experiences with negative stereotypes of Autism, or due to outrage at false statements made by curbies and curbie organisations. For instance, the one I remember from the NSW Autistic Foundation is a series of ads that started by saying "What disorder can stop a child from loving their dog?".
- If you get involved in Autistic rights debates, you may be tempted to insult Neurotypical people, or say that Autistics are "better" than Neurotypicals. Don't. Anti-NT statements are just as moronic and counterproductive as anti-Autistic statements. If you say to people that it's okay to have a different neurotype, you'd better believe that it's okay to have a different neurotype, such as Neurotypicalism.
This far from covers the topic, but hopefully it offers a rough jumping point to find out more.