Aspies For Freedom

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(Be warned: monologue post)

Hello,

I have been thinking recently that PDD-NOS, rather than Asperger’s Syndrome, would fit me more accurately. My main differences are that, even on my most “Aspergers-Predominant” days, I am still social (and on my “ADD-Predominant” days I am very social), and naturally social, e.g. I picked up all social skills intuitively and early in development, and I actually genuinely enjoy socializing.

The other difference is in regard to my sensory abnormalities and the fact that they seem to be more profound than any other Asperger’s child or adult I know (and I know about 25) or heard of. For example, (and this is what usually occurs), when I was at film camp two months ago, surrounded by kids with Asperger’s and HFA (it was specifically for those children), we were standing in a room with an overhead projector waiting for a presentation when suddenly the projector accidentally turned on to a very, very noisy scene. About half of the Asperger’s kids plugged their ears and calmly walked outside, yet I began to get completely involuntary muscle contractions, contortions, tics, and mass amounts of pain ringing through my spine (it feels like an electric shock). This is my normal reaction to sensory overload (other than space-out, when I go into a seizure-like state after a long period of sensory bombardment, or pass-out, which, as you can guess, means passing out and throwing up at the same time (which luckily has only come very, very close to happening twice or so)).

Reading back over the last paragraph, I realize I sound so negative, so I will counter the negative part of sensory abnormality with the positive part (I do not know if these things are more widespread among Aspies than my unusual negative symptoms): My eyes are naturally attracted to tiny, near microscopic patterns and dots, which is always visually interesting (my photography benefits from this hugely), among other things. I also do not feel temperature on my “Aspergers-Predominant” to “Neutral” days, and, though I have to watch out for hypo and hyperthermia, it keeps me feeling a lovely, lukewarm temperature Smile. There are more positive things which I cannot think of at the current moment.

Sorry about the longevity of this post!

Will

P.S. Everyone I know agrees that I am much more social and have much more profound sensory abnormalities than most Asperger’s-people.
Hmm, not all Aspies are the same so it's still entirely possible for you to be an Aspie after all. I also get quite bad reactions to annoying and sudden noises but tend to internalise them and then eventually "melt down".

Wm Wrote:
I have been thinking recently that PDD-NOS, rather than Asperger�s Syndrome, would fit me more accurately. My main differences are that, even on my most �Aspergers-Predominant� days, I am still social (and on my �ADD-Predominant� days I am very social), and naturally social, e.g. I picked up all social skills intuitively and early in development, and I actually genuinely enjoy socializing.



The two defining characteristics of AS are social interaction & very focused interests.  Have you delved into 'Sensory Integration' challenges?  

It is not yet a stand alone Dx in the dms
, and does not allow for OT intervention unless there is an additional challenge in learning or communication requiring SPED or SLP intervention.  

So when a child needs OT intervention he or she is given a "real" dx such as adhd, AS, language, LD, etc.  B/c sensory integration is foundational to learning, its not hard to find a diagnostic label, even if it is 2ndary to the actual issue.

http://www.spdparentshare.com/May05Consi...eChild.pdf

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