08-07-2007, 08:31 PM
Hello, my name is Louise and I have 2 boys aged 6.11 and 4.9. My
youngest is of my mind and his ex-SLT ( American ) 100% Hyperlexic,
it was his ex American SLT who suggested my sons Hyperlexia at his
Decembers IDP meeting at preschool. The following week I was given
some info which she had pulled off from http://www.hyperlexia.org I read it
once, twice and jumped for joy as she had found my very COMPLEX son,
I was so relieved and pleased as I could begin to understand all the
many daily challenges I was facing, a few days later the penny
dropped, oh no ...its associated with Autism, to be honest it took me
at least 2 months of study and research before I could comfortably
say the word. On the 12/7 he met the Senior Paediatrician for an
assessment who said that Hector was fit and healthy, very active,
very bright and very complex, he was not sure what the Educational
Psychologist was going to make of him. On Mon the 23/7 he was seen
for another assessment with the Educational Psychologist, this went
well as Hectors Autism was pretty strong and clear for the 90 mins
that he was happy to be in the room. I actually enjoyed the
experience because I felt a huge sense of relief that all of my
concerns were going to be dealt with. The Educational Psychologist
asked me if I had looked at Asperger Syndrome, I said yes and had
dismissed it because of his excellent Gross Motor Skills and his VG
Fine Motor Skills. I told her that I felt that Hector seemed to only
fit Hyperlexia 100% but I also said that it appeared that there is
not a standalone diagnosis for it, more is the pity, as I really want
it recognised and Hector also needs Hyperlexia recognised as his
precocious reading ability is helping him at home with his language
and I know it will definately help him in the classroom for when he
starts school in Sept. I have recently received her report, so far I have read it twice, I have contacted her secretary at the MAT office as I have a few questions and amendments that I would like addressed before it is sent out for circulation. She also said that Hector will be referred for Sensory Integration Disorder to the Occupational Therapist, when she said those words I could have jumped for joy as Hector often does, as I truly believe this is something serious that gets in the way for Hector to enjoy life more.
One of the Early Years team members very kindly gave me her own
personally signed copy of " The Toxic Child " by Sue Palmer, I am now half way through the book and I am already coming to the conclusion that it is going to reinforce what I already know about the way life can be if we choose it to be that way. Has anybody heard of or read this book. Personally I am trying to not feel offended as it really does look at the Basics eg. Diet and how to wean off junk, Play & Exercise and the crucial role they have in childrens development, Why sleep is vital for learning and how to ensure children get enough of it, the dangers of television & computers and how to get the best out of electronic media, education and how to help your child prosper at school. Really full of common sense ( IYKWIM )
The book that I really want to read is the highly recommended " Out of
Sync Child " by Carol Kranowitz. I suppose I really should get it now.
He has Sensory Issues and I would like that looked into ! He has had
Skin Prick Testing at the Allergy Centre and tested positive for 3/10
non-food substances - House Dust Mites, Cats & Dogs, we have a cat so you can imagine how busy I was, I fully recommend "PetalCleanse" for cats/dogs, his common cold like symptoms are alot less frequent these days. I also decided to remove Casein from his diet, I have had so much positive feedback regarding the change in his behaviour (
fascinating) I noticed a difference in 4 days, more focused/ better
meaningful communication with improved eye contact and calmer. The
Dieician at the Allergy Centre has requested that he has Coeliacs
Screening Test, Immunoglobins, Full Blood Count, U&E, Glucose & Liver
Function Test, naturally I have concerns regarding his well being and
also there is strong history of Coeliacs Disease on my side of the
family, I will be removing Gluten from his diet after the test
results have been looked at, I will be following the GFCF diet.
I have read 2 books regarding Hyperlexia and I can thoroughly
recommend them:
When Babies Read by Audra Jensen
Reading Too Soon by Susan Martins Miller
I have found many good websites for further information regarding
Hyperlexia and for joining a Global Network of Virtual Friends, the
main thing I have learnt is to not allow myself to feel alone or
misunderstood, learn all I can about the condition,.Become his
expert. Look for the keys that work for my very young son and to not
stop until I have found them. He is very unique and has this amazing
gift of being able to read way ahead of his peers, this can be used
to help him to learn the language and to socialise. I am aware that
early diagnosis is important, as this will enable effective teaching
strategies which will encourage more typical childhood development.
Would love to meet other parents/carers in the UK who think or know
for sure that they have a Hyperlexic Child !
I would really appreciate your thought and comments regarding Hectors
pending diagnosis for AS, I am trying to not get too anxious, I would
be alot happier if the fit was better ( IYKWIM ). The letter arrived
today for the Stage 3 Planning/Diagnostic Meeting for Wed 17th Oct.
Any book recommendations for helping me to understand Aspergers ?
I do have other concerns and questions, I will post again another time.
I look forward to hearing from you and it would be wonderful to meet
someone from the IOW with AS or Hyperlexia experience [/color]!
Thankyou, Kind regards Louise UKSAHM to Ambrose 6.11 (NT) & Hector
4.9 ( Diagnosis Pending - AS / Hyperlexia / SID )[color=navy]
youngest is of my mind and his ex-SLT ( American ) 100% Hyperlexic,
it was his ex American SLT who suggested my sons Hyperlexia at his
Decembers IDP meeting at preschool. The following week I was given
some info which she had pulled off from http://www.hyperlexia.org I read it
once, twice and jumped for joy as she had found my very COMPLEX son,
I was so relieved and pleased as I could begin to understand all the
many daily challenges I was facing, a few days later the penny
dropped, oh no ...its associated with Autism, to be honest it took me
at least 2 months of study and research before I could comfortably
say the word. On the 12/7 he met the Senior Paediatrician for an
assessment who said that Hector was fit and healthy, very active,
very bright and very complex, he was not sure what the Educational
Psychologist was going to make of him. On Mon the 23/7 he was seen
for another assessment with the Educational Psychologist, this went
well as Hectors Autism was pretty strong and clear for the 90 mins
that he was happy to be in the room. I actually enjoyed the
experience because I felt a huge sense of relief that all of my
concerns were going to be dealt with. The Educational Psychologist
asked me if I had looked at Asperger Syndrome, I said yes and had
dismissed it because of his excellent Gross Motor Skills and his VG
Fine Motor Skills. I told her that I felt that Hector seemed to only
fit Hyperlexia 100% but I also said that it appeared that there is
not a standalone diagnosis for it, more is the pity, as I really want
it recognised and Hector also needs Hyperlexia recognised as his
precocious reading ability is helping him at home with his language
and I know it will definately help him in the classroom for when he
starts school in Sept. I have recently received her report, so far I have read it twice, I have contacted her secretary at the MAT office as I have a few questions and amendments that I would like addressed before it is sent out for circulation. She also said that Hector will be referred for Sensory Integration Disorder to the Occupational Therapist, when she said those words I could have jumped for joy as Hector often does, as I truly believe this is something serious that gets in the way for Hector to enjoy life more.
One of the Early Years team members very kindly gave me her own
personally signed copy of " The Toxic Child " by Sue Palmer, I am now half way through the book and I am already coming to the conclusion that it is going to reinforce what I already know about the way life can be if we choose it to be that way. Has anybody heard of or read this book. Personally I am trying to not feel offended as it really does look at the Basics eg. Diet and how to wean off junk, Play & Exercise and the crucial role they have in childrens development, Why sleep is vital for learning and how to ensure children get enough of it, the dangers of television & computers and how to get the best out of electronic media, education and how to help your child prosper at school. Really full of common sense ( IYKWIM )
The book that I really want to read is the highly recommended " Out of
Sync Child " by Carol Kranowitz. I suppose I really should get it now.
He has Sensory Issues and I would like that looked into ! He has had
Skin Prick Testing at the Allergy Centre and tested positive for 3/10
non-food substances - House Dust Mites, Cats & Dogs, we have a cat so you can imagine how busy I was, I fully recommend "PetalCleanse" for cats/dogs, his common cold like symptoms are alot less frequent these days. I also decided to remove Casein from his diet, I have had so much positive feedback regarding the change in his behaviour (
fascinating) I noticed a difference in 4 days, more focused/ better
meaningful communication with improved eye contact and calmer. The
Dieician at the Allergy Centre has requested that he has Coeliacs
Screening Test, Immunoglobins, Full Blood Count, U&E, Glucose & Liver
Function Test, naturally I have concerns regarding his well being and
also there is strong history of Coeliacs Disease on my side of the
family, I will be removing Gluten from his diet after the test
results have been looked at, I will be following the GFCF diet.
I have read 2 books regarding Hyperlexia and I can thoroughly
recommend them:
When Babies Read by Audra Jensen
Reading Too Soon by Susan Martins Miller
I have found many good websites for further information regarding
Hyperlexia and for joining a Global Network of Virtual Friends, the
main thing I have learnt is to not allow myself to feel alone or
misunderstood, learn all I can about the condition,.Become his
expert. Look for the keys that work for my very young son and to not
stop until I have found them. He is very unique and has this amazing
gift of being able to read way ahead of his peers, this can be used
to help him to learn the language and to socialise. I am aware that
early diagnosis is important, as this will enable effective teaching
strategies which will encourage more typical childhood development.
Would love to meet other parents/carers in the UK who think or know
for sure that they have a Hyperlexic Child !
I would really appreciate your thought and comments regarding Hectors
pending diagnosis for AS, I am trying to not get too anxious, I would
be alot happier if the fit was better ( IYKWIM ). The letter arrived
today for the Stage 3 Planning/Diagnostic Meeting for Wed 17th Oct.
Any book recommendations for helping me to understand Aspergers ?
I do have other concerns and questions, I will post again another time.
I look forward to hearing from you and it would be wonderful to meet
someone from the IOW with AS or Hyperlexia experience [/color]!
Thankyou, Kind regards Louise UKSAHM to Ambrose 6.11 (NT) & Hector
4.9 ( Diagnosis Pending - AS / Hyperlexia / SID )[color=navy]